CHAMP – Coalition For Headache And Migraine Patients
Collaboration, communication, and coordination for the good of patients.
CHAMP brings together the most influential patient advocacy organizations and leaders in the area of migraine, cluster, and headache diseases. CHAMP enhances communication, coordination, and collaboration to more effectively fight stigma and help people achieve fair access to treatments. Our greatest strength is our members and that is a reflection of how strong people are who live with headache diseases.
American Migraine Foundation
The American Migraine Foundation provides education, support, and resources for the millions of men, women, and children living with migraine. Its mission is to advance migraine research, promote patient advocacy, and expand access to care for patients worldwide. Learn more: americanmigrainefoundation.org
Association of Migraine Disorders
The Association of Migraine Disorders (AMD) is devoted to expanding the understanding of migraine disease and its true scope. For patients, AMD shares the opinions of experts in its series of short podcasts. AMD also believes that migraine has yet to capture the support of the general public and therefore it hosts Shades for Migraine, a playful, collaborative public awareness campaign. Learn more: migrainedisorders.org
Chronic Migraine Awareness, Inc.
CMA, Inc. is committed to being the voice of the chronic migraine community. This is accomplished by supporting, educating, and empowering people in their health journey with online peer-to-peer global support groups, social media campaigns, and in-person events. Learn more: facebook.com/groups/cmaware
Clusterbusters
Clusterbusters is dedicated to raising awareness for cluster headache. The organization educates medical professionals and the patient community in order to reduce time to diagnosis and increase access to appropriate treatments. Clusterbusters’ online and face-to-face support and education helps patients lead their best lives, and sometimes saves lives. Learn more: clusterbusters.org
Cluster Headache Support Group
The Cluster Headache Support Group is dedicated to providing a safe, supportive, community for patients and caregivers affected by cluster headache. It offers patient education and access to accurate, relevant information, and resources, as well as drives and supports scientific research that results in treatment advances for patients with cluster headache. Learn more: chsg.org
Danielle Byron Henry Migraine Foundation
The Foundation was established in memory of beloved daughter and sister Danielle, who battled migraine disease for 10 years until it ultimately led to her death at the age of 17. Its mission is to increase access to care, especially for young adults and children, by educating primary care providers in the treatment of migraine. The Foundation provides support to those living with migraine and raises community awareness on its impact on patients, families, and society through events. Learn more: daniellefoundation.org
Global Healthy Living Foundation
The Global Healthy Living Foundation (GHLF) is a 501(c)(3) nonprofit organization whose mission is to improve the quality of life for people living with chronic illnesses by advocating for improved access to health care at the community, state, and federal levels, and amplifying education and awareness efforts within its social media framework. Learn more: ghlf.org
The Headache & Migraine Policy Forum
The mission of the Headache and Migraine Policy Forum (HMPF) is to advance public policies and practices that promote accelerated innovation and improved treatments for persons living with headache and migraine disease. Using a campaign approach to support the education of all stakeholders about policy issues, HMPF’s goal is to further access to appropriate prevention and treatment options for all patients. Learn more: headachemigraineforum.org
HealthyWomen
HealthyWomen is the nation’s leading independent, nonprofit health information source for women. Its mission is to educate women to make informed health choices for themselves and for their families. For 30+ years, millions of women have turned to HealthyWomen for answers to their most personal health care questions. Learn more: healthywomen.org
Migraine Again
Migraine Again is a purpose-driven health media company focused on empowering patients with education and insights that help them suffer less and live more. Founded by patients, for patients, in 2014, Migraine Again’s website articles, newsletter, videos, podcasts, interviews, and resources are produced by people with migraine, and medically reviewed by leading headache specialists. Learn more: migraineagain.com
Migraine.com
Health Union builds patient-centric online destinations dedicated to meeting the needs of people living with chronic health conditions, including Migraine.com. Migraine.com inspires people living with migraine to embrace their whole selves and engage in relationships with others to build community. Featuring daily, original content,, Migraine.com can provide a bridge between patient experience and health care providers. Learn more: migraine.com
MigraineDisease.com
MigraineDisease.com is a comprehensive resource for migraine and headache education. With content medically reviewed by a team of board-certified Migraine and Headache specialists, the website covers all aspects of living with migraine disease, including diagnosis, treatment options, lifestyle management, and behavioral health. Learn more: migrainedisease.com
The Migraine World Summit
The Migraine World Summit is the largest virtual patient event in the world for those with chronic headache and migraine diseases. Its mission is to reduce the global burden of migraine through world-class education. Each year the event brings together tens of thousands of people to learn from leading doctors, experts, and specialists. Learn more: migraineworldsummit.com
Miles for Migraine
Miles for Migraine creates live, patient-participatory events that reduce the burden of isolation and stigma for people with migraine and headache diseases, and their caregivers. It builds community by bringing people together at fun walk/runs and other educational and support programs, including ones engaging and supporting adolescents. Learn more: milesformigraine.org
National Headache Foundation
Founded in 1970, the National Headache Foundation (NHF) is the oldest and largest foundation for patients with headache. With a mission to cure headache, and end its pain and suffering, the Foundation focuses on education, advocacy, and research. The NHF publishes HeadWise® magazine, and NHF News to Know. Learn more: headaches.org
Patient Advocate Foundation
The Patient Advocate Foundation (PAF) provides real-time help for patients facing critical illness and debilitating disease as they encounter barriers in their health care. Utilizing experience from 20+ years working alongside patients, PAF is well-known for its quality educational materials. PAF is also the producer for Migraine Matters, an educational resource for persons with migraine or headache disorders. Learn more: patientadvocate.org
Runnin’ for Research
Runnin’ for Research (R4R) strives to improve the quality of life for people with migraine and other headache disorders by raising funds for much-needed research while additionally promoting patient empowerment, public awareness, and local and national advocacy. Learn more: runnin4research.org
U.S. Pain Foundation
The mission of the U.S. Pain Foundation is to empower, educate, connect, and advocate for individuals living with chronic illness that causes pain, as well as their caregivers and clinicians. U.S. Pain works to enhance the quality of life for people with pain, improve patient outcomes, address access and affordability issues, and increase public awareness and empathy for the issue of pain. Learn more: uspainfoundation.org
Patient opinion leaders
CGRP & Migraine Community
CGRP & Migraine Community is here to support, guide and educate people with migraine navigating the new CGRP medications. We encourage our members to communicate real-life experiences with the CGRP medications, and we provide up-to-date, easy to understand, evidence-based information together with tools to help with access and insurance. We partner with Migraine Meanderings, the migraine advocacy branch of CGRP & Migraine Community. Learn more: facebook.com/groups/CGRPandMigraine
The Daily Headache
The Daily Headache is a blog that candidly addresses the emotional experience of living with migraine and headache disorders and also explores coping strategies, treatments, and research. The Daily Headache is a place where people with migraine and headache disorders come together and remind each other that none of us are facing this alone. Learn more: thedailyheadache.com
Golden Graine
Golden Graine is a blog/brand created by professional patient Katie M. Golden to share how she lives a fulfilled life with chronic migraine and pain. She is engaged in the community by writing for Migraine.com and the INvisible Project, as well as serving as the Migraine Advocacy Liaison for the U.S. Pain Foundation and Director of Patient Relations for CHAMP. Learn more: goldengraine.com
The Migraine Diva
The mission of The Migraine Diva is to help empower and educate people living with headache, migraine disease, and mental illness through patient advocacy. Its goal is to share ideas, resources, and information on accessible treatments to better the lives of migraine patients and their caregivers. By sharing these realities, The Migraine Diva hopes to empower, elevate, and validate the patient voice and experience. Learn more: themigrainediva.com
MigrainePal
MigrainePal helps those with migraine get the facts with medically referenced answers. Readers can find practical and evidence-based information to empower themselves. MigrainePal was created by Carl Cincinnato, who works with several charities and organizations, including Headache Australia, CHAMP and the Brain Foundation, to help lift the global burden of migraine. Learn more: migrainepal.com