Participants

Disparities Edition

Calvin Eaton

Anti-Racism Educator Fights for Fair Treatment in Health Care—and Beyond He could be teaching a course on the history of African American culture through food at a local college or…

Heather B.

A Call for Respect: One Woman’s Story from Victim to Advocate for the Marginalized A dedicated bird watcher, Heather B. frequently passes time observing the minute details of a beak,…

Elisa Friedlander

Persevering Through a Struggle on Multiple Fronts Elisa Friedlander lives with complex regional pain syndrome (CRPS), a rare neurological condition characterized by burning sensations in the limbs. But she feels…

Nicole Lemelle

Spreading Awareness about Multiple Sclerosis with Writing For some, blogging is a fun pastime. For Nicole Lemelle, it’s a lifeline—a chance to connect with a community of patients and tackle…

Jasmine Thomas

Making Sense of an Unexplainable Circumstance Jasmine Thomas says she can’t remember what life was like before her lupus diagnosis. She was a teenager when early symptoms of the autoimmune…

Gary Ho

Helping Others after Being Denied Help When Gary Ho was only 5 years old, he and his family were evacuated from Saigon, living in a refugee camp for six months…

Diane Talbert

Speaking Up and Speaking Out about Life with Psoriatic Arthritis Diane Talbert stood quietly by the wall of the conference room. Her skin was completely covered—though that would have been…

Annie Segarra

Harnessing the Power of YouTube Although she has helped raise awareness about Ehlers-Danlos syndrome (EDS) across the globe, it took nearly two decades for disability activist and YouTube star Annie…

Arelys Feliz

The Unicorn Patient For Arelys Feliz, the phrase “blinding pain” is not hyperbole. The 30-year-old describes herself as a walking medical textbook. She was only 3 when she was diagnosed…

September is Pain Awareness Month.Join the U.S. Pain Foundation this month as we create awareness about #LifeWithPain.